Useful Links

Patient Support & Disease Information Organizations and Websites

About NTM: https://www.aboutntm.com/

COPD Foundation: http://www.copdfoundation.org/

Alpha-1 Foundation: http://www.alpha1.org/

Cystic Fibrosis Foundation: http://www.cff.org/

Inspire Online Patient Community: https://www.inspire.com/

Lung Foundation Australia: http://lungfoundation.com.au/

Primary Ciliary Dyskinesia: http://www.pcdfoundation.org/

 

Government Agencies

U.S. Food & Drug Administration (FDA): https://www.fda.gov

Department of Health & Human Services: https://www.hhs.gov

Federal Aviation Administration (FAA): https://www.faa.gov/about/initiatives/cabin_safety/portable_oxygen/

National Institutes of Health (NIH): https://www.nih.gov/

 

Online Patient Resources

Create a Family Health History Online: https://familyhistory.hhs.gov/FHH/html/index.html

Online Medication Schedule: https://secure.medactionplan.com/mymedschedule/

Medication Reminder: http://www.forgettingthepill.com/index.php

AboutNTM.com: https://www.aboutntm.com

Aspergillus & Aspergillosis Website: https://www.aspergillus.org.uk/

 

Healthcare & Insurance Information:

Maxor Specialty Pharmacy: http://maxor.com

Step-by-step Guide to Challenging Health Plan Decisions: http://kaiserfamilyfoundation.files.wordpress.com/2005/07/7350consumerguidev4_080805.pdf

State Information on Health Care Benefit Review: http://www.ncsl.org/research/health/health-insurance.aspx

 

Medical & Research Institutions:

National Jewish Health: http://www.nationaljewish.org/

University of Texas Tyler: http://maclungdisease.org/

National Heart, Lung & Blood Institute (NIH): https://www.nhlbi.nih.gov/research/intramural/researchers/pi/olivier-kenneth

National Institute of Allergy & Infectious Diseases (NIH): https://www.niaid.nih.gov/research/lab-clinical-infectious-diseases

Oregon Health & Science University: http://www.ohsu.edu/xd/education/schools/school-of-medicine/departments/clinical-departments/medicine/divisions/infectious-diseases/

Mayo Clinic: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient

University of Miami: http://uhealthsystem.com/patients/pulmonary-medicine

Georgetown University: https://www.medstarhealth.org/doctor/dr-anne-elizabeth-odonnell-md/#q={}

University of Pennsylvania: https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/harron-lung-center/mycobacterial-disease-and-chronic-respiratory-infections

The Falkinham Lab: http://www.faculty.biol.vt.edu/falkinham/

NYU Langone Medical Center: https://med.nyu.edu/medicine/pulmonary/

The Cohen Lab at JHMI: https://www.hopkinsmedicine.org/research/labs/the-cohen-lab

UC San Diego: http://pulmonary.ucsd.edu

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